In our opinion it is important to talk about persons with albinism and not say ‘albino’ because this does not define solely who you are. You can have albinism and be a dancer or a lawyer, a mother or father, with many other characteristics that have nothing to do with being a person with albinism.
Incorrect, due to the light transmissivity of the iris, the iris colour differs per person. The most common colours are blue, brown and green). The blood vessels are only more visible due to the red color of the blood vessels.
There are 2 main types of albinism: Oculocutaneous albinism (OCA) and Ocular albinism (OA).
OCA albinism is the most visible form of albinism; there is no melanin present in the eyes, hair and skin. Melanin produces pigment which provides protection from the sun. Without or with less melanin, persons have easy sun burns and the eyes let more light through which hurts. Persons with the OCA variant have a very light skin, and white hair. OCA effects the eyes, thus persons with OCA are visually impaired, have nystagmus (Wobbly eyes) and are very light sensitive.
OA only effects the eyes, persons with OA have a variety of colours of hair and skin.
If a parent or doctor thinks a child may be born with albinism, it is possible to get a genotype test done at the hospital.
Without the genotype test, the doctors can roughly estimate which type of albinism you may have, for example whether you have OA or OCA. For the various subtypes, a genotype test must be done by the geneticist as different genetic mutations may cause albinism. Both parents must be carriers of the defect in a gen for a child to be born with albinism.
Racism is discrimination based on ethnicity/population group. For example, racism against people of color, people with an African or Asian appearance.
Discrimination is the unequal treatment of different groups in our society for example: people with a disability, religious background, gender, sexual orientation and ethnicity.
Only with permission and if you are allowed it is important to credit the photographers and the models and other staff who contributed to the photo.
The UN created 17 Sustainable Development Goals (SDGs) which range from nature conservation to promoting education for women and girls. These goals form the 2030 agenda by which time poverty should be eradicated in the world.
The Open Eyes Foundation contributes to:
Goal 3 : “Good Health and Wellbeing”
Goal 4 : “Ensure inclusive and equitable quality education and promote lifelong learning opportunities for all.”
Goal 5 : “Achieve gender equality and empower all women and girls.”
Goal 10 : “Reduce inequality within and among countries”
Source: https://sdgs.un.org/goals
For terminology please also refer to the glossaries below:
If you wish to contact us please send an email to : info@openeyesfoundation.nl
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We are of course very grateful if you decide to support our goals.
On the homepage you will find the donate button which will lead you to Donorbox which is a protected payment environment used by many charities around the world.
It is possible to do a one-off payment or monthly, or annual contributions.
You can also make a direct donation to the foundation through the following bank account number at the TRIODOS bank in the Netherlands:
IBAN: NL55TRIO 0320597628
The BIC or swift-code is: TRIONL2U
The donation policy of the Open Eyes Foundation can be found here:
ANBI is the non-profit tax designation in the Netherlands issued by the Tax Office
(Belastingdienst) in accordance with the general tax laws (Uitvoeringsregeling
Algemene Wet Rijksbelastingen 1994). ANBI stands for (Algemeen Nut Beogende
Instelling). This designation is only issued to organisations, which meet the required criteria. The Open Eyes Foundation was granted the ANBI status.
Advantages:
The foundation does not need to pay heritage or gift tax to the authorities.
In certain countries you may deduct your gift from the income/turnover depending on the rules in your country.
If you need a statement to confirm your gift please get in touch with us:
info@openeyesfoundation.nl
The strategic policy document is available in English and can be downloaded here:
For enquiries please contact us at info@openeyesfoundation.nl
